10/28 - Update
It's been a month since updates but that's since there hasn't been a ton of changes going on. Here's the update!
Symptoms are still fairly mild but I definitely have up-and-down days
Brain fog (very mild and only occasional)
For the most part i deal with the symptoms but I still have them all
I am on shot # 3 of Lanreotide. I will be getting shots for a very very long time. I get them every 28 days
As I mentioned in the last update, my scans in September were good. My next scans are on December 19
My next oncologist appointment is December 19. We will have to discuss pancreas and spleen surgery then. I am getting mentally prepared.
I view my experience in three phases
Initial diagnosis - DONE
Initial treatments - IN PROCESS
Shots, chemo, surgeries (liver, pancreas, etc)
Surveillance and who the hell knows what - WONT START TIL AFTER PANCREAS SURGERY
After the pancreas, I will stay on my monthly shots and potentially move to other treatments but also regular scans and treatments based on the scans (I will be in treatment for the rest of my life, but it's treatable so I am fine with that)
We paid more attention to the kidney this week too. We had a great appointment with the Urologic Oncologist.
Doesn't think I need to do anything right now - it's stable or shrinking which leads them to believe it's not getting worse or spreading
She is worried that if I do anything it will put the treatments for the PNET at risk
So there might be progress on the kidney but it still remains a secondary concern
I think that's the update! Thanks for reading!